Here are some recent A-LIST highlights:

Mayo Clinic, with A-LIST's assistance, conducted a study examining different types of lucid episodes within Alzheimer's Disease and related dementias. As a result, the Mayo team identified four different types of lucid events. Details were published in a research article, "Developing and describing a typology of lucid episodes among people with Alzheimer's disease and related dementias"

Published in Gerontology and Geriatric Medicine, via Sage Publishing: “Caring for Dementia Caregivers: Understanding Caregiver Stress During the COVID-19 Pandemic”

Cited in public comments or presentations to the FDA, in support of Aduhelm and Rexulti treatment availability

Utilized by the Brain Health Academy to educate healthcare professionals on dementia risk factors

Sub-awardee of a three-year grant from the National Institute on Aging working with Mayo Clinic for studying lucidity in dementia

Partnering on a survey of the value of treatments in a consortium initiated by Tufts University.

Projects including AD-PACE and Biogen

How the A-LIST Works:

Online surveys: Twice a month you will receive an email from A-LIST Founder Meryl Comer inviting you to answer a short survey.

Surveys ask about the issues we care about: Past survey topics include challenges for caregivers; dementia symptoms, such as agitation; managing the COVID-19 pandemic; and traveling with dementia.

We use anonymous survey results to make life better for our community: We make sure policy makers, researchers, health care providers, drug developers, insurers, and others who serve our community understand and consider our insights and preferences.

Get started! CLICK HERE to add your name, then check “I Agree” to sign our consent form that explains the A-LIST study. Then take our first online survey: the Pulse of the Community.

"There is strength in the number of caregivers willing to devote their daily lives to improving the lives of their loved ones suffering from Alzheimer’s. The A-LIST nurtures that strength by bringing us together to facilitate a path to a cure, and centering on the needs of both culturally diverse patients and caregivers." - A-LIST Caregiver

What We’ve Learned: The Impact of COVID-19

We are so pleased to share our A-LIST article,  “Caring for Dementia Caregivers: Understanding Caregiver Stress During the COVID-19 Pandemic,” published in Gerontology and Geriatric Medicine, via Sage Publishing. You can also read it HERE.

This data was gathered in eight longitudinal surveys conducted over the course of the COVID-19 pandemic.   

Thank you for raising your voice, sharing your experiences and contributing to the growing wealth of knowledge about the Alzheimer’s experience.

For questions about A-LIST membership or partnership, please contact Terry Frangiosa tfrangiosa@usagainstalzheimers.org.

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