Giving Voice to What Matters Most: Dementia's Not What You Think It Is

UsAgainstAlzheimer’s “Giving Voice to What Matters Most” series features the stories of people who are living with dementia or at high risk for the disease. Tracey Lind, Daisy Duarte and Greg O’Brien recently met by Zoom to talk about issues that are important to them. The three friends want to help others understand what it’s like to have dementia or be at high risk. In part four of the series, Tracey, Daisy and Greg talk stigma and misconceptions about dementia. We hear first from Tracey Lind. Tracey Lind: There are a number of misconceptions and stigma related to dementia. One

Giving Voice to What Matters Most: Days Mush Together

UsAgainstAlzheimer’s series “Giving Voice to What Matters Most”— features the stories of people who are living with dementia or at high risk for the disease. Tracey Lind, Greg O’Brien and Daisy Duarte recently met by Zoom to talk about issues that are important to them. By sharing their experiences, they hope to reduce stigma and misconceptions about dementia, and empower others to speak freely and live life to the fullest. In this episode, Tracey, Daisy and Greg talk about how they manage day to day, including during the COVID-19 pandemic. Tracey Lind: In some ways it’s easier because we’re really

What Will Happen to My Loved One if I Become Sick with COVID-19? Making a Plan.

By Terry Frangiosa and Meryl Comer The personal and collective fear of “What If I Get Sick with COVID-19?” continues to dominate headlines and affect the mindset of people across the nation and much of the world. To bring it closer to home and into our own (immediate and extended) families, we all feel the angst that we could potentially infect a loved one. Compounding that angst is the stress, felt by care partners of people with Alzheimer’s disease or another dementia, who balance that apprehension 24/7, even as their loved one’s dementia continues to progress. Five UsAgainstAlzheimer’s A-LIST monthly

Mandy Moore and a Show for All of Us – This is Us

When I think back to Season 4 of This is Us, I’m reminded of the overwhelming emotion that I felt watching as Mandy Moore’s character, Rebecca was hearing for the first time that she had mild cognitive decline. Beside her was her son Randall. At that moment, I remember thinking, “FINALLY” – there on the screen of a major television show seen by millions, a conversation has begun. Alzheimer’s disease is coming out of the shadows. And now Mandy Moore, This is Us and Alzheimer’s are getting more attention with a cover story in the new issue of Parade. She’s

Giving Voice to What Matters Most: Dementia During COVID-19

UsAgainstAlzheimer’s series “Giving Voice to What Matters Most” features the stories of people who are living with dementia or at high risk for the disease. Tracey Lind, Daisy Duarte and Greg O’Brien recently met by Zoom to talk about issues that are important to them. By sharing their experiences, they hope to reduce stigma and misconceptions, and empower others to speak freely and live life to the fullest. In part two of the series, Tracey, Daisy and Greg talk about their experiences during the COVID-19 pandemic. Tracey Lind: In some ways, I think the shutdown was actually good for me